Friday, May 05, 2006

release

greyson at six months. the old fashion kitchen scale doesn't weigh correctly. at six months, he weighed 14 pounds.

for those that don't know, greyson is underweight. a lot underweight. between 9-10 months greyson started the first downward spiral of losing weight. it was then, his pediatrician started discussing the possibility of testing. but within three months with extreme changes to his diet (adding high calorie/high fat foods) he managed to weigh in just shy of 20 pounds at his next baby well check. success! it seemed as though greyson was finally on the right track and the battle was over. his doctor told us his body was responding, and for now further test were not needed. we were of course, thrilled.
fast forward three months to the present. may 3rd, greyson had his 15 month baby well check. he will actually be 16 months in twelve days. he weighs 18.7 pounds. he is continuing to loose weight. for months he has been in the fifth percentile for weight. currently he isn't even on the chart.
today we started the first round of lab tests.
i don't know what to hope for, what to pray for.
that the tests reveal something?
that they find nothing?
everything seems so overwhelming. confusing. scary.
developmentally he is soaring. normally at this age, he should be saying 3-6 words.... greyson to date says....55.
makes it easy to think maybe he is ok, and that he is just "little". but deep down there is that feeling i'm fighting and wrestling with, because physically he is failing to thrive.
at times like this the internet is a blessing and a curse. so much information, yet too much information. causing a truck load of worry on our shoulders today.

15 comments:

Renee said...

I didn't realize Greyson was underweight. I'm sure everything will be fine; I'll keep your family in my prayers. Please keep up posted!

Chris said...

I never realized how much worrying a mother does until now. It never ends does it?
I didn't realize he was underweight either. He looks extremely healthy and happy to me.
Everything will be just fine. I will keep you and your precious little family in my prayers. ;)

Jennifer said...

I know everything will work out. I will be praying for you and your family. Let us know how everything goes.

K.T. says peace said...

OMG-praying for ya girl!

Jenny said...

Girl I could write a whole book on this. I have went thru the same thing with my oldest Brayden. I am still struggling with it. I have taken him to doctors all over and they wouldn't do anything. I finally put my foot down and thru a huge fit. They set him up with the Growth and development clinic in Childrens hospital in Little Rock. They test him for EVERYTHING under the sun. They came up with that his Zinc level was very low and it was making him not hungery. They gave him some liqued Zinc and put him on 113 cans of pediasure a month and Resource juice drinks (high protine drinks). He is still taking it. He was 2 almost 3 years old and only weighed 18 1/2 pounds. We took him back for a check up and he had gained up to 23 pounds in a month. Which is great for him. He was so skinny that you could see his ribs and so pale that he looked like a ghost. They told me that if he would have stayed that little after he turned 3 that it would start affecting his brain and make him a little slow. I almost freaked out because he is so smart. They took him off of the Zinc makes he was gaining weight and had reached their goal. He was still below the precential. At first he was below the 5%. After they took him off he done good for awhile he was only taking the pediasure. Now he is loosing weight again so I called the place and started ordering the juice again. I have to order it thru a home IV company because they do not sell it in stores. They also told me on the first visit that if he didn't gain the weight then they were going to have to put in a feeding tube for him. Thanks to all of the prayers and all his gained the weight. I think that I am going to have to take him back tho. If you need to talk to me or anything about this email me at jestelle@aaasea.org
I will pray for you. Pray for me also. I am here for you anytime. I don't have a computer at home but I will respond when I get back to work.

Jenny said...

Have them check his zinc level it wouldn't hurt a thing. I feel you on this because it scared me to death. When they told me that they were going to check him for cystic fibrosis I was terrified. He will be okay it is just probably something like the Zinc level and it can be fixed with medication. Does he eat green beans or red meat?

Michelle said...

There is a little boy at my church just about Greyson's age, and he is in the same situation. He is VERY little. Hasn't really ever been on the charts and hasn't been gaining any weight in months. So this doesn't seem to be uncommon, but that doesn't make it any less frightening.
Try not to let yourself worry too much about it. (if that is possible- moms were made to worry) The doctors will help you through it, as will the prayers of family and friends. I am sure this is beyond scary. So I will be praying for you and your family.

Ex-playgroup mommy said...

I'm so sorry Greyson (and you) have to go through this. One of my best friends has a 5 year old who has been continually underweight...not even on the charts underweight. They did testing and found out he was allergic to eggs. Maybe Greyson has an allergy your not aware of? I know it's so scary but you will get through it. I'm here if you need me and I'll keep all of you in my prayers. hugs xoxox

Ex-playgroup mommy said...

BTW -- what a CUTE picture!! I love it!

Marisa said...

I had no idea -- there is no way to tell from the pictures you post. He looks very healthy!

Maybe he's just little. My son went thru a period where he wasn't gaining weight (he was throwing up very often). Doctors tested for tons of things and found nothing. At 3 he is a healthy weight (just like his peers).

Try not to drive yourself crazy by looking thing ups on the internet. It could very well be a minor thing (let the doctors figure it out).

You'll be in my thoughts. :-)

Beth said...

Well that picture is so sweet. He looks like a very healthy little boy in all your pictures. I hope that you find out everything is ok.

Heidi said...

You and Greyson are in my prayers Tara - I didn't know even from his pictures he was underweight. I know what it's like to have worries and concerns about our little ones. I pray he'll be ok and that you can find peace about it too.

Shannon said...
This comment has been removed by a blog administrator.
Shannon said...

WOW! I will be in agreement and prayer that he is healthy, whole and healed in his body!

Hugs to you all and get some rest! Here is a two scriptures for you to stand on:

Phillipians 4:6-7
1 Peter 2:24

Shannon said...

oh, and here's another for the 'good report' you will recieve:

Phillipians 4:8